Yesterday, we had a nephrology appointment and all is well. Whew! I have begun taking the kids’ blood pressure at home manually, so I was curious to see how I was doing. My collection of readings seems in line with the office’s, so I was happy. Though, I did not bring in my numbers because I am not confident enough doing it, that I didn’t want to be discouraged. Any way, we figured out that Marseille’s diastolic numbers can tend to be a little low, which could explain why she complains of headaches a lot and gets tired so easily. Yes, I know this is not really exciting news… We are going to continue monitoring until December and then decide what steps need to be taken next.
Okay now onto the exciting news… in June the kids had to get echo-cardiograms. Due to their high blood pressure, we want to make sure that there is not damage to their hearts. It has been two years since their last echo and the results of those confirmed that Bentley had thickening tissue on his left ventricle. But since careful monitoring of his blood pressure and medications… plus God’s kindness, Bentley’s heart has healed and it is soft and normal again! I was so excited to hear that news. Marseille’s heart is still normal, so I was grateful to hear she still does not have any damage. I tried to explain to Bentley, that God has used medicine and the doctors to heal his heart and he was so confused. Considering, he had no idea that there was anything wrong!
Also, while we were out running errands, two people actually apologized to the kids when they guessed at the kids age. Our kids get noticed everywhere they go, so being told that they are “so small for their age” and trying to convince people that they are the age that the kids say they are is not easy task. Especially, when the kids are right there! Well, this can be very frustrating to me because I do not want them to be self-conscious of their size, which they have begun to notice on their own. I was so grateful when the two woman that asked their age, where kind enough to correct themselves to the kids when they made comments about their size and age. For me, that was pretty exciting too!
Well, that is our big news! Hope we didn’t let you down!
xo, nikki :)