Words and music by Stephen Altrogge
© 2006 Sovereign Grace Praise (BMI).
Well, this morning my sweet husband gave me the Il Divo in Concert DVD. YAY! I love concerts on DVD! I can’t wait to cuddle up and watch it with him tonight. Last week, I cooked him a special meal for our anniversary since he is on call.
We had mussels in a white wine sauce, no knead bread, steamed broccoli with garlic, sparkling grape juice to drink, and elairs for dessert . We had dinner by candlelight — which Bentley thought was “beautiful!” and we were serenaded by our wedding playlist! It was so much fun to surprise Danny with this very romantic dinner!
Grandma’s visit. It was a short visit… only four hours. That’s right my grandma flew up for FL — which she is visiting right now too– to see me for lunch! I had to make it a very special lunch, so we had Stuffed Portobello with Gorganzola Cheese, focaccia (it turned out great being that it was the first time I’ve ever made this bread!), and Cornmeal Cake with cranberries. It was very gourmet and we both loved it! I’m so glad that she came to visit me, though all of us were sad that she didn’t get to visit with Danny. Bentley loved showing off to her and the fact that she read a lot of books to him. Marseille loved her too, she actually fell asleep on her! I love her so much and it was good to see her, even if it was only for lunch!
My focaccia dough rose! I was very surpised :)
It turned out pretty, don’t you think?
Well, my little pumpkin head is growing up far too fast. She is such a joy. The differences between her and Bentley are so funny! We love how loud she can get. The girl is a talker. Most people can get her to talk and smile at them.
She LOVES attention. When she realizes that no one is paying attention to her, she starts squealing until you walk over to her. As soon as she sees you she lights up.
I’m so glad that she loves to be kissed and hugged. She is so cute that you really can’t help but love on her. As soon as we kiss her, she starts smiling. Especially when Danny gets on one side and I get on the other and kiss her cheeks. She loves it, and gets so excited. She’s a girl after my own heart!
Last week, I went to a breastfeeding class and she had gained 1/2lb in one week. She didn’t nurse very well at the class because there was too distracting for her. Maybe next time! She was just under 14lbs a week and a half ago. She has grown four inches since birth. Yesterday, Danny said, “She doesn’t look like a little baby anymore!” It’s true. She is growing way too fast.
She has been rolling over in her bassinet, so it’s time to switch her out of it. Another area of growth! I haven’t actually seen her roll over yet! When she has tummy time she is usually looking around not showing any signs of desiring to roll over. It will be interesting to see when she starts crawling because Bentley started at 5 months!
Bentley holds her attention. Watching him makes her so happy. She smiles and coos at him. It’s very cute and makes my heart happy. He loves to hold her and kiss her and she loves that! Hopefully, they will be pals!
Lately, she has been sleeping through the night. I know as I right that it will change tonight! I put her down around 8pm and she sleeps until 6-6:30am. I can’t complain. I haven’t lost much sleep with her! I think that is God having mercy on me since I have to chase after Bentley.
I cannot believe that she will be 5 months old on the 23rd! Marseille is such a sweet baby, in some ways I wish I could keep her from growing so quickly, but I am excited to see what she will be like. She definitely has an attitude!
We had a great Thanksgiving with my parents, sister and uncle! We had a lot of food — that included some cooking lessons for me! Early morning shopping on Black Friday, and fireworks that evening!
Since it was too cold to take the babies hiking, we had a archery tournament. It was so much fun. I had never done it before, so it was interesting. Of course the boys were good at it. My sister was better than me, but my mom came out and put us all to shame!
Over the week, Danny and my dad worked on a huge go cart and an engine. They were fixing the go cart for a friend. My dad was teaching Danny about small engines. Danny was very excited about fixing stuff with my dad. They got the go cart working and we all had a blast riding it.
Overall, it was a lot of fun. Thank you guys for everything!
There will be pictures, provided by my uncle’s new fancy pants camera!!!
This is going to be a very short post, as I don’t have much time to write :)
Bentley genetic testing came back positive, he does have Mutated Atosomal Polycystic Kidney Disease. Unfortunately, at this time there is still nothing they can do for him right now, but continue to closely monitor him. This news is not a shock to us and we are just thankful that we know what it is. God’s kindness and mercy have been over us. At Bentley’s last checkup with the pediatrician, he had gained 2 lbs, he is now 23lbs! The doctor was totally surprised because he gained that in one and half months! This is after taking him off the nutritional drink that he had been on. His almost daily avocado smoothie is a huge part of it :)
HERE is a webinar on the disease. If you are interested in watching it. It is 55 mins long.
God has been so kind in revealing everything to us at a slow pace. Well, at least for me. All of Bentley’s issues at birth have been a direct result of this disease. It is often caught in utero, but not always. I only had one ultrasound with the Maternal Fetal Medicine and everything checked out fine, so somewhere between 22 weeks and his birth things started to change. My mind is quickly tempted to what ifs. What if I had another ultrasound… would they have caught it then? BUT God, allowed the doctors to see no sign of present danger and told me I was having a very health boy… what if they had told me I wasn’t having a health boy. I would have been devastated! To have your first child and know that he wasn’t going to have a good chance of surviving, isn’t very encouraging. God protected me from that! I’m so grateful!
Then, all of the signs for this disease were present at the NICU… underdeveloped lungs, problems with salt levels, hypertension, the use of a ventilator and NO2… why didn’t they catch it then? Well again, I see God’s hand in that. What if they had saved Bentley’s life and turned around and told us that he probably will need a kidney transplant and possibly dialysis before he reaches 10 years old. Would we have been so excited for his first days home, the first year of his life? Probably not. God has slowly been revealing things to us so that we can grow in trusting at each stage and I cannot express how thankful and grateful I am for that. Sometimes it is nice to have all the answers and know what is coming, but we were able to enjoy Bentley for a full year without any problems or complications, and God has reveled to us his disease before it is too late. Again… HOW KIND!!! What grace!
Bentley’s occupational therapy has been going so well. All of us are so please. He is gaining muscle around his stomach and it doesn’t get nearly as big and bloated. His therapist commented yesterday that all the nurses have notice that his ribcage is going back in place and his is body is responding so quickly. It’s hard work for him. He is exhausted after his workout! They all love him so much. I have met so many devoted mothers in the waiting room. Many of them have been going to therapy for years. I can’t complain one hour, once a week for eight months is nothing compared to their children. God has been so kind to Bentley. What a testimony he will have one day!
Well, that was a “quick” update on Bentley. I will have one on Marseille either later today or tomorrow.